Rare disorder concerning a congenital vascular malformation in the brain that usually leads to severe cardiac decompensation unless treated.
BBC News article featuring a mother of a toddler born with Vein of Galen malformation describing life-saving glue injections.
UK parent support group providing information and resources on coping with Vein of Galen malformation.
Article from the UCSF Children's Hospital on this congenital vascular malformation, diagnosis and treatment options.
Description of this vascular malformation by eMedicine.
Support group from New Zealand with information on the disorder and medical presentation, links to articles and personal stories.
Explanation from the Toronto Brain Vascular Malformation Study Group including an illustrative vascular angiogram, its diagnosis, and treatment.
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