Directory of Prader-Willi Syndrome Resources

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Prader–Willi syndrome is a rare genetic disorder in which up to seven genes on chromosome 15 are deleted or unexpressed on the paternal chromosome.

Resources in This Category

• Foundation for Prader Willi Research Canada

  http://www.fpwr.ca/
  Charitable organization dedicated to eliminating Prader-Willi Syndrome through the advancement of research. Includes information, details of research projects and how members of the public can get involved.

• GeneReviews: Prader-Willi Syndrome

  http://www.ncbi.nlm.nih.gov/books/NBK1330/
  Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.

• Gretton Homes

  http://www.grettonhomes.co.uk/
  Information about the organization that offers residential care in the UK for people with Prader-Willi syndrome.

• Latham Centers

  http://www.lathamcenters.org/
  A residential facility, located on Cape Cod, USA, for the treatment of adults and children with Prader-Willi Syndrome. Includes details about diet, medical news, the programs, and consulting services.

• Patient UK: Prader-Willi Syndrome

  http://www.patient.co.uk/doctor/Prader-Willi-Syndrome.htm
  Provides information for medical professionals on this complex genetic disorder.

• Prader-Willi Alliance of New York

  http://www.prader-willi.org/
  Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.

• Prader-Willi and not feasting at Christmas

  http://www.bbc.co.uk/news/blogs-ouch-30433365
  The BBC reports on a 16-year-old with a condition that means she never feels full, and the meticulous meal planning that goes into Christmas.

• Prader-Willi Syndrome Association (USA)

  http://www.pwsausa.org/
  Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.

• The Foundation for Prader-Willi Research

  http://www.fpwr.org/
  A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.

• The Prader-Willi Syndrome Association (UK)

  http://pwsa.co.uk/
  Charitable organization providing support to people with PWS, their families and carers, and the professionals who work with them. Includes information and resources.

• University of Michigan Health System: Prader-Willi Syndrome

  http://www.med.umich.edu/yourchild/topics/praders.htm
  Information about this syndrome in children and links to relevant articles and organizations providing advocacy and support.

Related Categories

• Home > Health > Conditions and Diseases > Nutritional and Metabolic Disorders > Obesity
• Home > Health > Mental Health > Disorders > Neurodevelopmental > Autism Spectrum
• Home > Health > Conditions and Diseases > Neurological Disorders > Chromosomal

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