Directory of Spinal Muscular Atrophy Resources

Home > Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Spinal Muscular Atrophy

Spinal muscular atrophy is a term for a group of inherited neuromuscular diseases. All forms of the disease affect specialized nerve cells called motor neurons, which control the movement of voluntary muscles. SMA causes lower motor neurons in the base of the brain and the spinal cord to disintegrate, preventing them from delivering electrical and chemical signals that muscles depend on for normal function.

Resources in This Category

• Children gain independence with powered wheelchairs

  http://www.bbc.co.uk/news/magazine-28044337
  The BBC News reports on a company that makes child wheelchairs, and discusses the effect on children with spinal muscular atrophy.

• Elizabeth's Page

  http://www.our-sma-angels.com/elizabeth/
  Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.

• Families of SMA (Spinal Muscular Atrophy)

  http://www.fsma.org/
  International support group and resource center for this disease, includes current research.

• FightSMA

  http://www.fightsma.org/
  Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.

• NHS Choices: Spinal Muscular Atrophy

  http://www.nhs.uk/conditions/Spinal-muscular-atrophy/
  Provides information on this debilitating genetic condition. Includes a short video and details of symptoms, causes, diagnosis, treatment and prevention.

• Our SMA Angels

  http://www.our-sma-angels.com/
  Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.

• SMA Support Inc.

  http://www.smasupport.com/
  A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.

• Spinal Muscular Atrophy Foundation

  http://www.smafoundation.org/
  Information on SMA, and the latest updates in research, treatment and funding.

• Tori's Buddies

  http://www.fightsma.org/index.php?fam_tori
  Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.

Related Categories

• Home > Health > Conditions and Diseases > Neurological Disorders > Spinal Cord

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