Directory of Ectodermal Dysplasia Resources

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Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body.

Resources in This Category

• DermNet NZ: Ectodermal Dysplasia

  http://www.dermnetnz.org/hair-nails-sweat/ectodermal-dysplasia.html
  Factsheet from the New Zealand Dermatological Society.

• Ectodermal Dysplasia Society

  http://www.ectodermaldysplasia.org/
  Information about the organization as well as the ED condition. Includes links, news articles and contact details.

• MedlinePlus: Ectodermal Dysplasia

  https://medlineplus.gov/ency/article/001469.htm
  Factsheet with causes, symptoms, tests, treatment and prognosis.

• National Foundation for Ectodermal Dysplasia

  http://www.nfed.org/
  ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.

• NORD: Ectodermal Dysplasias

  http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal+Dysplasias
  Offers synonyms, a general discussion and resources.

• The Andy Fund

  http://www.andy.org.mx/
  Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.

Related Categories

• Home > Health > Conditions and Diseases > Genetic Disorders

 

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