Directory of Muscular Dystrophies Resources

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The musculary dystrophies are a group of diseases characterized by progressive degeneration and/or loss of muscle fibers that result in loss of muscle strength. All or nearly all of them have a hereditary origin but details of the type of genetic defect and of the prognosis for the disease vary from type to type. Duchenne muscular dystrophy is the most common form, though there are at least 6 other forms of the disease. Several million people throughout the world have a form of muscular dystrophy. In the United States, it is estimated that 250,000 suffer from a form of muscular dystrophy.

Subcategories

• Organizations
• Personal Pages
• Support Groups
• United Kingdom

Resources in This Category

• DMD Information

  http://www.angelfire.com/band/teja/index_dmd.html
  Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.

• DMD Pioneers

  http://www.dmdpioneers.org/
  Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.

• Duchenne/Becker Muscular Dystrophy

  http://www.ygyh.org/dmd/
  Includes key facts and animated slide shows of causes, diagnosis and treatment.

• General Practice Notebook: Duchenne Muscular Dystrophy

  http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035
  Clinically-oriented information.

• MDA Ride For Life

  http://www.mdarideforlife.org/
  Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.

• Muscular Dystrophy

  http://www.musculardystrophy.gr/
  Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.

• National Registry for Myotonic Dystrophy & Facioscapulohumeral Dystrophy

  https://www.urmc.rochester.edu/neurology/national-registry.aspx
  Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.

• NHS Choices: Muscular Dystrophy

  http://www.nhs.uk/conditions/Muscular-dystrophy/
  Provides a short video on living with this condition and details of symptoms, causes, diagnosis, treatment and prevention.

• NINDS Muscular Dystrophy Information Page

  http://www.ninds.nih.gov/disorders/md/md.htm
  Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

Related Categories

• Home > Health > Conditions and Diseases > Genetic Disorders
• Home > Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > MEB Disease
• Home > Kids and Teens > Health > Conditions and Diseases > Muscular Dystrophy

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