Home > Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Muscular Dystrophies > Support Groups > Chats and Forums
These are online communities or meeting places which provide information and support to members sharing a common experience such as a condition or disease, or a care-giving role. Message boards, mailing lists, chat rooms and moderated forums may be found here.
http://health.groups.yahoo.com/group/ChristiansWithDuchenneMuscularDystrophy/
Mailing list for Christians who have Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/dmdsupport/
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/Duchenne_Muscular_Dystrophy/
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/dysferlin/
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
http://health.groups.yahoo.com/group/FSH_Friends/
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
http://health.groups.yahoo.com/group/FSHmusculardystrophy/
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
http://health.groups.yahoo.com/group/Limb_Girdle_Muscular_Dystrophy/
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
http://health.groups.yahoo.com/group/md-list/
Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
http://health.groups.yahoo.com/group/mdaalltheway/
Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
http://health.groups.yahoo.com/group/muscledisease/
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identified neuromuscular diseases.
http://health.groups.yahoo.com/group/MyotonicDystrophy2/
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
http://health.groups.yahoo.com/group/PROMM/
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
http://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/
An online support group for people affected by any neuromuscular condition.
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